About Our Support Group
About Us
A fun fact is that our private Facebook group has 656 members and is constantly growing! We started having reoccurring monthly support groups in August of 2019! Our support group started off as in-person meetings. However, when COVID hit, we switched to a virtual meeting via ZOOM. Since then, we have realized a lot more people could attend if we kept it virtual. Between life and Lupus, out of the 53 interested in meetings each month, we can have anywhere from 1-15 people per meeting. The number one thing about our meetings is that they are a safe space for people to open up and share not only about their Lupus journeys but whatever else may be going on in their lives. As we don’t offer medical advice, what we can offer is a reassuring shoulder, opinions, and most importantly our own personal experience.
What Makes Us Special
What makes our meetings special is that they are run by two Lupus warriors with our own individual Lupus journeys. Our group focuses on empathy, camaraderie, and making a network of relationships to help navigate everyday life. The meetings have always been open to not only Lupus warriors, but family and friends of Lupus warriors, or anyone affected by Lupus.
How the Meetings are Structured
Each meeting has a very loose structure, nothing strict but more like an outline that is followed. Each meeting lasts about two hours and is always started off with a positive quote. Then, we usually have a small portion set aside for a brief informational PowerPoint on a dedicated topic for that month. After each PowerPoint we end that with another positive quote. This leads us in to a fun interactive activity that is usually a fun or silly question that allows the group to get to know each other better. This also gives us a little bit of a breather between the informational portion and the final portion of our meetings. Lastly, we open the floor to anyone who is willing to share or needing to talk.
Good Things to Know!
We want anyone interested in our group to know that even though the meetings last about two hours, you don’t have to come at the beginning or stay the whole time. You can come late, leave early, just listen, or share your whole life story, all we care about is that you come! Since the Lupus Lotus Warriors support group is moderated by two Lupus warriors, we never have a recurring day, date, or set week of each month for our meetings. We are sure you know that Lupus is something that likes to keep you on your toes. Therefore, we never know if a last-minute test or appointment is going to pop up or if Lupus is going to have us in bed that day if we plan too far in advance. Even though we push through as much as we can for the Lupus community, we have to take care of ourselves to better serve you as a whole. We appreciate your understanding as we always try to give enough notice and reminders to each meeting! We always post about meetings on social media, and we send out reminder texts, to those who want them on the day of the meetings as another reminder. If there is anything you need in between meetings, you are always welcome to reach out.
Explore Some of Our Monthly Topics
Fourth Post
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Third Post
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Second Title
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Title in here
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